I have not jumped ship!

I know, I know.  It’s been forever.  I’m sorry.  It’s not that I don’t love you all.  If you want a full explanation, I’ll have to email you the rest of the boring details.  I’ll try to give a brief synopses of event since my last entry.  It’s kind of a depressing story, at least the majority of it, so if you’re not in a place to read that sort of thing right now, it might be best to come back later.

Initially I had technical difficulties.  (I still am, but that will be fixed by tomorrow or the next day for good).  After the technical difficulties were somewhat fixed, I had annie difficulties.  While most of you were very worried about the xanax, I didn’t take too much of it at first.  I was taking the remeron (mirtazapine?  whatever) and turned into a completely different person.

At least as an agoraphobic prior to the remeron, I was a functional at home agoraphobic.  I dressed myself to shoes every day.  I had routines in place.  I could get myself showered, dressed, and at least function throughout the day.  Enter the remeron.

For 9 days I was in a constant state of confusion.  I didn’t sleep.  I wasn’t manic by any means, just completely sleep deprived.  When I took the pill, there was about an hour where I was OK.  After that, and it’s supposed to make you sleep after that, I went into a crazy state of mind where I had no concept of what was real and what was some kind of lucid dream.  And when I tried to sleep, I was physically awake, but mentally dreaming.  I knew I was dreaming at the time.  But I’d wake up and have no idea whether what “happened” the night before was real or part of some weird lucid dream.

Day 8 of taking the remeron, and utter sleep deprivation, it was time to take it again.  I held it in my hand with the water in my other and I started physically dry heaving.  I made a mental note: my body hates this medication.  But I took it anyway.

Day 9 of taking the remeron at the same time every night, my body decided to take charge.  30 minutes before it was time, I was overcome with the need to “just put my head down” where I was sitting.  I woke up the next morning having no idea where I was, what day it was, or whether it was 4am or 4pm.  It was 4am.

Once my head caught up and I realized, “oh crap, i just slept for the first time in days” followed by “… because I didn’t take that poison”.  I felt better already.  I wasn’t sure yet whether I would attempt to take it again that night or not.  Then I got a voicemail from my dear friend Peg.  She was wondering where the heck I had been.  Why hadn’t I been updating my blog?  Why hadn’t I been talking to her or the other people I am so honored to know?

The truth is: I don’t know.  I just wasn’t OK.  I don’t have any other explanation.  I could barely get myself motivated enough to shower, or have interest in my son/playtime, let alone blogging or the accountability I’ve set up here in our little community.  I was able to find my dear friend Peg online and let her know I was still alive, and what was going on with this evil pill (for me, at least).  And I was holding the pill in m hand, deciding whether or not to put myself through it again for the sake of saying “I gave it a fair shot” when I got a message from her.  It stated something to the effect of: “I don’t think you should take that pill again”.  I’m not always one for “signs from the universe” or whatever, but this definitely was one of those things that made the hairs stand up on the back of my neck.   How did she know the pill was in my hand?  How did she know anything that was happening in my head at that second?

She didn’t.  She said she’s obviously not a doctor, but that going backward when I’m trying to go forward was never part of the plan.  I had an appointment set for tomorrow (Thursday) and I could just talk to the doctor about it when I went.

Then I got to thinking.  I was SO up front with this woman during our first session.  I explained I’ve done my research.  I know how this is “cured” or overcome, and if she wasn’t willing to work with MY plan, then it wouldn’t work out with us professionally.  She nodded and nodded, said she agreed, and went in the complete opposite direction.

The problem with all of that, though, is that I really like(d?) this woman.  I felt there was a decent connection.  Ultimately, though, we just completely differed in approach.  I can find out why I get triggers all day long.  It’s interesting, and certainly insightful, but fat lot of good it does me now.

Of course, now is the time in any story where something disastrous happens.  It did.  Our family dog was sick, and then in critical condition.  It was going to be up to me whether or not to keep her alive or put her out of her misery, based on the findings of this morning (which was tomorrow when it was going on).  I was quite certain I was going to have to be the one to pull the plug on my parents’ dog, since I was the sanest person about the whole situation.  You can always tell when something is bad, when I’m the most held together person in the room.

Then, on a whim, I tried to call a place here that is much, much closer to where I live than the Knoxville doctor is.  I’d tried to call before, but they had the appointment set out for about a month and a half advance, so I had to pass.  One of the nurse practitioners happened to have a cancellation for the following day (today) and I could come in.  I happily obliged, with much gratitude for my “whim”.

It was a miserable experience, today.  What I thought would be about an hour of feeling uncomfortable turned into 3 hours of all kinds of new anxiety.  I’m about 82% certain I was the only person in that lobby (it was packed, in great contrast to Knoxville doctor) who wasn’t there by court order – if you get my drift.  I had to see about 3 different people before I could even see the nurse practitioner.  By the time I got to her particular waiting area, I was half expecting her to fly out on a broom to greet me.

She was actually a really interesting woman.  I liked her, much as I liked Knoxville doc, but in a different and more professional way.  This Nurse Practitioner works in what I can only describe as a puppy mill for mentally ill people.  In/Out/Next Please.  And just from the things I overheard myself, and the people I saw around me (yes, OK, I’m judgmental, but you all love me anyway) she must see quite a variety of issues.  I thought about this at the time.  There were downsides, sure.  But the upside was, there’s no freaking way I could be something new to her.  Or shocking to her.  I bet it takes a lot to shock that woman.  The upside of the mentally ill mill?  She’s seen it all, probably twice just this morning.  The downside?  I have to go there.

I’ll save what she said for a later post, because I’m actually starting to feel up to posting again.  Or even typing “wordpress.com” into my browser, which was a huge task before today.  But I’m hopeful.  Starting new meds tomorrow, staying on the “as neeeded” xanax (which hasn’t been a WHOLE lot, less the last couple days with the critical condition dog), and have discontinued my relationship with Knoxville doc.  Knoxville doc’s office was closed today, but I left a message to cancel.  I will call tomorrow and tell her the truth.  As I said earlier, I like this woman.  I owe her an explanation, or at least a “this isn’t working out”, but I’d prefer to not go to my appointment tomorrow and have to pay $160 for the pleasure of feeling closure.  A phone call should do it.  Don’t you think?  So long as I own up to it?  What I really don’t want to do, which is a very “me” thing, is to just cancel and stop calling or taking calls from her.  I’m trying to be bigger than that these days.

If you’re curious, I’m still getting prescribed the xanax, though not in large or abundant doses.  It works, so long as I don’t start abusing it (another “me” thing).  And the new medication I’m on, is a VERY low dose of abilify (aripiprazole) at 5mg.  I believe the usual dose is 30mg.

So that, along with a PRN (as needed) xanax is probably going to do the trick for me to take charge of my own recovery and start “practicing” as Dr. Claire Weekes describes in her books and audio.

That’s all I have for now.  I really appreciate your comments and emails, and I am so sorry that a lot of the last emails I sent bounced back to me.  I promise I will be feeling up to catching up soon, but this post alone has taken hours and breaks and more hours to complete.  Also, it’s 3 minutes until midnight here, so it’s at least past time for me to go lay in bed and try to pretend to sleep.

I will get there.  I haven’t given up.  I’m kinda back at square 1.  Maybe 1.5.  But it’s progress nonetheless.  Once I start getting more back to my “old self” (which wasn’t a great starting point) I promise to at least write personally to the people who have taken their time to write me.

Much love and appreciation,

a

8 Responses

  1. Eh…you’re not back to square one yet. Medication, in my opinion, isn’t the cure. Its your attitude about your recovery, and your motivation to get better that is the cure. You still have that! Now you just need to push yourself forward, regardless of the past week you’ve had. I had some pretty scary run-ins trying different medications…which is why I stopped trying them! And in the end, that was what was best for me.

    Things to try in the mean time…exercise. I got a treadmill and walked on that thing for HOURS. It helped to get out all that extra energy usually reserved for panic attacks. Eating breakfast, lunch AND dinner. You’d be amazed at how on edge one can be after missing a meal. Nix caffine. I stopped drinking caffine for 8 years…until I was 2 years into my recovery from anxiety. There are days (ie-pms days) when I know not to have any because I know it will trigger anxiety. Going out every day…even if its just for a walk around the block. Just plan to go out every day. You need to make a habit of it, since right now your habit is to stay home! Maybe every other day..or every 3 days..you might want to try a going a little further out…probably by yourself if you’re not a big fan of going out alone.

    These little things will help A LOT. Its definitely a good foundation for bigger things to come. Soon, you’ll be making a huge strides..and I can’t wait to read them. The thing about agoraphobia…is that when you accomplish something so simple as going to the store alone to buy milk…it feels like you just conquered the world! After having been agoraphobic, you appreciate life SOOOO much more then the average person. To this day, when I think about where I was 4 years ago, and where I am now….I get teary eyed 🙂

    Soon…you’ll be there too.

  2. I totally agree with Sarah (in Cali). I haven’t heard of ONE person who escaped agoraphobia just by taking meds, and I know of several who got a lot worse and who had to wean themselves off the meds before sorting out their anxiety issues.

    Best wishes!

  3. kudos to you for trying!
    Someday you will look back at the “old” you and when you see how far you’ve come, you’ll really be impressed with how far you’ve come.

  4. How are you feeling this week??

  5. Sarah are you not getting my emails still? I sent you another a few days ago.

  6. I got one on monday, which I replied to. Did you get my reply?

    I’m looking forward to reading a blog! 😛

  7. I didn’t get your reply. Damn. Oh well, your wish was my command. Enjoy the new update. xoxo

  8. I just sent it again. Maybe you should change your blog respond email to a yahoo or gmail account?

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